li ar Austin Akin's Cancer Battle: Outdoor fun....








Saturday, February 17, 2007

Outdoor fun....



My sweet Austin on his new slide (yes his eye is swollen)



These are just some of Austin's markins for radiation


Yes we know the front door is pink, Oh well.


Austin at his very own sink



Austin in his new playhouse

Sorry for posting so late. I started to post Friday but never finished it so here is the update for Friday and today......

Friday...... We were to have radiation at 8 am but they called me Thursday at 5:30 pm to say it was pushed to 9:30 am. Well the doctor was an hour late so it was 10:30 before we even got started. I wouldn't be so upset if we didn't have other appointments to follow. Austin had to get his blood count check at Patel's and we need to go to clinic to sign consent forms for transplant. So I had to call and let them know we were way behind. Austin is doing very well with his radiation. The last two days the anesthesiologist sang him to sleep (well as she was pushing the white magic juice). She has a beautiful singing voice. He has enjoyed going to CTRC. We don't know what it is but he loves to go into the vault. This time since we were waiting so much they just let him play in there. He loves the big machine. After radiation we went to to the clinic first. When I had called Patel's office they said they were running behind because Patel was gone so Patsy was by herself. So we signed out consent forms for transplant have got a schedule. Our last day of radiation will be Feb. 28th and after radiation we will head to the hospital where they will admit him. He will just get fluids this day. March 1st he will start his chemo. He will have chemo for five days. On March 6th he will go to CTRC for Total body irradiation (TBI). On March 7th will be his big day. Transplant Day!!!! So we are moving fast. But to me fast is good. I hope everything can go as planned. Traci the transplant coordinator is great and gives us a wonderful road map to follow. It helps me so much to see it visual as well as to hear it. After transplant he may come home pretty quick just depends on Austin. He will be isolated for at least 100 days out. So we are looking at end of April beginning of May when he can start to try and get some normal in his life. He will be allowed to play outside and go on walks as long as the weather permits and there are not alot of people outside. He must wear his sunscreen and hat to protect his sweet face and bald head.

Saturday...... As you can see from the pictures Austin has had a wonderful day outdoors. He got a new slide and house to play with outdoors. Nannie and Pop got a good deal on a playhouse at a resale shop. He loves it. Mommy and Daddy gave him his slide (an early birthday present). He took his nap around noon and after he was sound asleep I went and washed the patio off with antibacterial soap. Daddy set up the slide. When he woke up form his nap it was like Christmas. We told him to go look in the backyard and when he looked out the back door he said "WOW!!!!!" I could barley get his socks and shoes on and trying to put sunscreen on him was hard. It was so nice to watch him enjoy playing outside. He just smiled the whole time. We also went on a short walk down the street on his new canopy trike. I don't have a picture of him on it but I will take one tomorrow and post it. Nannie also found this trike at the resale shop and it is so neat. It is a tricycle that has a strap belt to keep him in his seat and a handle bar for the parent to push the child around. He has a canopy on top for shade. He loved to pretend he was riding it by himself.

Well Austin is ready for his bath so I will write some more tomorrow. He keeps me busy so I don't get on the computer that much anymore. But I enjoy every second with him.

PS warning on the pictures. Austin eye is swollen and dark from the radiation. Just didn't want any freaking out.
Elizabeth

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