The end to a long week...

The end of this week is here. Yeah. It was a wet one coming home. And I don't mean rain. Austin had a blood transfusion this afternoon and they have to give him a drug to make him pee. He usually only gets it before his transfusions but today since Patel was giving him a large unit he gave it to him afterwards. So on the way home we hit traffic and by the time we got home Austin was drenched in pee, car seat and all. Poor thing. But he is so happy to be home. He is kissing all of his toys. Tummy seems to be feeling good. He asked for a snack when we got home and ate it pretty well. His counts didn't look to bad today. Of course his red cell count was dropping but we knew that was going to happen. His ANC was at 1,300. Before we started chemo it was 800. Not too bad Austin. His platelets were 200 today!! Yeah platelets! Today he did well but didn't want to sit still. Can you blame him? For four straight days he has had to sit for hours. Lately after chemo he has been walking to the car. He loves to do this. We were at Patel's today at 8:45 this morning for chemo and were hoping to get in and out to get this blood transfusion so we could get on the road to home. But yes there was delay. We got through chemo around 11:30 and they told us the clinic was full, to down there in an hour. So we had an hour to kill. We went through the drive thru of Austin's favorite place to eat, Chick-fil-a and ate our lunch in the parking lot. We headed back to the clinic. The orders said to run the blood over four hours but they say that is impossible because the blood expires at four hours from the time it leaves the blood bank. So they ran it over for three hours. We learn new things each day. The nurses in the clinic could not get over that Austin needed a blood transfusion. He wasn't tired at all. He was full of energy, hopping around with the PCA. While waiting for the blood to come up, he ran around the room. Thank goodness no one else was in there. He would of driven them crazy. He was yelling and running all over the place. He fought the benadryl, but the benadryl one in the end. He now knows he is going to fall asleep so he doesn't ever want to sit still. So he is happy to be home with out being accessed and now can get a BATH!!!!! Prayers......for no fever and no admittance to the hospital...Pray that this chemo did the job!!! Bye Bye Neuroblastoma!!!!

Elizabeth