Still hanging out in room 32!!

We are still here and plan to be here for a little while longer. Austin's counts are still way down. The fever is gone but he is still on antibiotics until his counts come up. Sorry I didn't post yesterday but Austin didn't feel very good. He woke up from his nap screaming and nothing was calming him down. They had to call Dr. Patel and he ordered some Morphine to calm him down. We think he was having a headache. They didn't want to give him tylenol because then if he did have a fever they wouldn't know. Thankful it wasn't a heavy dose, it was just enough to put him in his happy place. He wakes up at night crying but as soon as I put his fluffy Wiggles blanket on him he stops. When he sleeps he sweats. He and the bed are always wet when he gets up. But he still insist on having that heavy blanket on him. He didn't eat all day until about 7 pm tonight. Right now he is watching his portable DVD player. The only thing that keeps him sane. He took an hour nap earlier but then fell asleep around 3:30 this afternoon. He needed platelets today and along with that comes benadryl. So he slept until about 7. He probably will be up late tonight. Oh boy. I took a cat nap earlier so hopefully if I have to I will stay up with him.LOL.

I talked to Dr. Patel yesterday and he said he will do scans when his counts start coming up. We will be doing more treatments with the Temodar. Today Patsy came in. She said his cultures have been coming back negative and he will stay on antibiotics until his counts come up to be sure. We hoping his counts start bouncing back fast. They rate they are going right now we could be here ten days or longer!!

Elizabeth